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Motor Neurone Disease (1819145)

Motor Neurone Disease (MND) Services

1. What is your NHS organisation’s catchment population?

Registered patients in Calderdale as at 30 September 2018 was 221,345.  For future reference, please note that this information is already available in the public domain via NHS Digital.

2. Does your organisation provide healthcare services for people diagnosed with MND?

NHS Calderdale CCG is a commissioner of healthcare services, not a provider.  Please see question 3.

3. If no, where do patients with MND in your catchment population access healthcare services? If your organisation does not provide healthcare services for people diagnosed with MND, please go to question 15.

Patients with MND will access services via our main acute provider which is Calderdale and Huddersfield NHS Foundation Trust (CHFT).

4. If yes, what is your NHS organisation’s catchment population for MND services (if different to Q1)?

Not applicable.

5. How many newly diagnosed patients with MND were referred to the organisation in each of the last three years?

a. 2017

b. 2016

c. 2015

Not applicable.

6. What is the total number of patients with MND that are currently receiving healthcare from your organisation?

Not applicable.

7. Is your organisation a specialist care centre for MND?

Not applicable.

8. In your organisation, where do patients with MND access services e.g. hospital inpatient services, hospital outpatient services, community clinics, domiciliary visits?

Not applicable.

9. In your organisation, are patients with MND seen in specialist clinics? 

Not applicable.

10. If yes,

a. Where are the MND specialist clinics in your organisation held?

b. How often are the MND specialist clinics in your organisation held?

c. How often are patients routinely reviewed in the MND specialist clinics?

Not applicable.

MND Healthcare Team

11. Who leads the MND services in your organisation (job title)?

Not applicable.

12. In your organisation, which jobs (f.t.e) are specifically funded to provide healthcare for people with MND, e.g. MND clinical lead, MND specialist nurse, MND specialist dietitian?

Not applicable.

13. Is there a multidisciplinary team (MDT) that provides care to patients with MND in your organisation?

Not applicable.

14. If yes, which professional roles are members of the MDT?

Not applicable.

MND Dietetic Services

15. In your organisation how many full time equivalent dietetic posts do you have?

Please see question 18.

16. Do you have dietetic posts that are specifically funded for MND services ?

Please see question 18.

17. If yes,

a. How many full time equivalent posts do you have?

b. What grade are they?

Please see question 18.

18. If no, which dietitians see patients with MND? Please list all posts including their job title and grade.

In relation to questions 15-18, the CCG would suggest these are more directed towards a provider of healthcare services (see question 2).  We suggest that you forward your questions to Calderdale and Huddersfield NHS Foundation Trust at foi@cht.nhs.uk.

19. In your organisation,

a. How many new patients with MND were seen by the dietetic service in each of the last three years, and where were they seen?

The CCG does not hold this information.  We suggest that you forward your question to Calderdale and Huddersfield NHS Foundation Trust at foi@cht.nhs.uk.

b. How many review contacts for patients with MND were seen by the dietetic service in each of the last three years, and where were they seen?

See question 19a.

c. How many dietetic patients contacts (new and review) were for oral nutrition support, and how many were for artificial nutrition support, in each of the last three years?

See question 19a.

Commissioning of MND Nutrition Services

20. Where does the funding come from for services for patients with MND in your locality?

Calderdale CCG.

21. Which organisations and departments are involved in each stage of the commissioning process of nutritional services for patients with MND in your locality:

a. Strategic planning (assessing needs, reviewing service provisions, deciding priorities)

b. Procuring services (designing services, shaping structure of supply, planning capacity and managing demand)

c. Delivery of services (which department and where are they located?)

d. Monitoring and evaluation (supporting patient choice, managing performance, seeking public and patient views)

NHS Calderdale CCG does not specifically commission nutritional services for patients with MND.  The CCG commissions dietetic services, including nutritional services, as part of the block contract with its main acute provider, Calderdale and Huddersfield NHS Foundation Trust. The dietetics service will see patients with MND along with patients who have been refereed for other reasons.

The CCG’s Service Improvement function works with providers concerning the planning / shaping of services.  The CCG’s Contracting and Procurement function oversees the procurement and contracting process including tendering and monitoring/evaluation of performance.  Delivery of service is the responsibility of the provider.

22. Where does the funding come from for nutritional services for patients with MND (e.g. nutrition and dietetics service) in your locality?

Nutritional services accessed by patients with MND are funded by the CCG under its block contract with its main acute provider.

 

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