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Neurology / Neurological Conditions (1617080)

1. Please confirm whether your CCG commissions services for people with neurological conditions. If confirmed, please state which of the conditions listed in Annex A are included in these services.

NHS Calderdale CCG does not have a restriction against any of the conditions listed.  However, for information, those conditions for which the CCG has specifically commissioned services have been underlined at Annex A below).

 

2. Please confirm whether your CCG has made an assessment of the prevalence of neurological conditions in your area. If confirmed, please provide details of the assessment, including the individual conditions listed.

NHS Calderdale CCG is currently analysing the Calderdale specific ‘Right Care – Commissioning for Value’ benchmarking pack for Neurology. The CCG will then be making an assessment of the prevalence of neurological conditions in the NHS Calderdale area.

 

3. Please confirm whether your CCG has made an assessment of the number of people using neurological services in your area. If confirmed, please provide details of the assessment, including the individual conditions assessed.

See response for question 2.

 

4. Please confirm whether your CCG has made an assessment of:

i) the total costs of neurological services in your area. If confirmed, please provide details of the assessment.

As per the response to Question 2, the CCG is in the process of validating this assessment. Information is publicly available within the Right Care Commissioning for Value pack for Neurology https://www.england.nhs.uk/resources/resources-for-ccgs/comm-for-value/north-region/#61.

ii) The per patient costs of neurological services in your area. If confirmed, please provide details of the assessment.

Information is publicly available in the Right Care Commissioning for Value pack for Neurology https://www.england.nhs.uk/resources/resources-for-ccgs/comm-for-value/north-region/#61.

 

5. Please confirm whether your CCG collects data on the experience of patients using neurological services. If confirmed, please provide details.

NHS Calderdale CCG does not hold information in this form as it does not collect patient experience data directly from neurological services specifically.

 

6. Please confirm whether your CCG:

i) includes service users in decision-making on the commissioning of neurological services,

NHS Calderdale CCG, as part of its approach to engagement, works closely with community assets, the third sector and partners, such as Healthwatch, on specific pieces of work which may include Neurology. We regularly engage and involve these stakeholders.

ii) includes service users in providing ongoing feedback on the quality of neurological services,

NHS Calderdale CCG does directly receive feedback specifically on the quality of Neurological services.

iii) takes any specific measures to support participation of people with neurological conditions in decision-making or providing feedback. If confirmed, please provide details.

NHS Calderdale CCG has actively trained groups in engagement that represent different communities, conditions and interests.  We regularly involve these stakeholders in conversations and planning.  See our website for more details on Community Voices.

 

7.) Please confirm whether your CCG collects outcomes data on the quality of neurological services in your area. If confirmed, please provide details of the quality measures that you use.

For the services commissioned by NHS Calderdale CCG, overall quality outcome data is measured within contract monitoring; however, data on specific outcomes measures in relation to neurological services is not collected.

 

8. Please confirm whether your CCG has taken any action to promote integration across primary, secondary, tertiary and social care services for people with neurological conditions. If confirmed, please provide details of what action has been taken.

As part of our developing work with Community Services, the CCG promotes integration across all services through its ‘Care Closer to Home’ (CC2H) and Vanguard Multi-Specialty Community Provider models. This is seen as integral across all services within the scope of CC2H and has been a generic approach rather than specifically for Neurology.

 

9. Please confirm whether your CCG has received a “neurology focus pack” sent out in April 2016 by NHS Right Care as part of its Commissioning for Value programme, and whether your CCG has taken any action as a result. If confirmed, please provide details of what action has been taken.

See response to question 2.  The CCG has not yet formulated an action plan.

 

 

Annex A: List of neurological conditions

  • Acoustic neuroma
  • Acquired brain injury
  • Ataxia
  • Batten Disease
  • Brain tumour
  • Carpal tunnel syndrome
  • Causalgia
  • Cavernoma
  • Cerebral palsy
  • Charcot-Marie-Tooth disease
  • Chronic inflammatory demyelinating polyneuropathy (CIDP)
  • Cluster headache
  • Congenital hemiplegia
  • Dementia (includes Alzheimer’s)
  • Dystonia
  • Encephalitis
  • Epilepsy
  • Essential tremor
  • Guillain-Barre syndrome
  • Haemorrhagic leukoencephalitis
  • Huntington’s disease
  • Hydrocephalus
  • Idiopathic intracranial hypertension
  • Malignant neuroleptic syndrome
  • Meningitis
  • Migraine
  • Motor neurone disease
  • Multiple sclerosis
  • Multiple system atrophy
  • Muscular dystrophy
  • Myalgic encephalitis/ chronic fatigue syndrome
  • Myasthenia
  • Myelopathy
  • Myositis
  • Myotonic disorders
  • Narcolepsy
  • Neurodegeneration with brain iron accumulation
  • Neurofibromatosis
  • Neuromyelitis optica
  • Parkinsons disease
  • Poliomyelitis
  • Post-Polio syndrome
  • Progressive supranuclear palsy
  • Radiculopathy
  • Refsum’s disease
  • Rett syndrome
  • Somatoform disorders
  • Spina bifida
  • Spinal tumour
  • Spinal muscular atrophy
  • Spondylosis
  • Stroke
  • Tarsal tunnel syndrome
  • Tourette Syndrome
  • Transverse myelitis
  • Traumatic brain injury
  • Traumatic spinal injury
  • Trigeminal neuralgia
  • Tuberous sclerosis
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